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Thursday, May 8, 2008

Governor Heineman, John (& Joey's picture) & Rachelle

John and I traveled to Lincoln on Wednesday, May 7, to receive a signed proclamation from Govoernor Heineman recognizing Saturday, May 10 as Nebraska Cornelia de Lange Syndrome Awareness Day. We decided not to take Joey as he has preschool class on Wednesdays, and we did not want him to miss attending as he only has yesterday and next Wednesday, May 14th left before school is out for the summer. We took his picture that John held up during the short ceremony. It was a great experience, and I am always excited to spread awareness about CdLS.


  1. hello there! i came clicked onto your page from baylee's family page and wanted to tell you congratulations and how did you go about all of this? joey is adorable!! i have enjoyed looking at your pictures and hope to get to know more about your family! again, congratulations!

  2. That's great news! Like Misty, I found your site from a link on Baylee's site. Joey is cute! Looks like he enjoyed his cake...


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