The above video was made by a good friend of our family. She used to be Joey's Service Coordinator for the Early Development Network up until he turned 3. She had a vision of giving all kids with disabilities a strong voice...and an opportunity to be heard. When she approached us about including Joey in the video of course we said yes. She did a great job and we are so proud to be part of such a wonderful project. Thanks Jen - you are awesome!
Awareness about any disability is a big step towards acceptance. We have found in our experience that the more people that know and understand about Cornelia de Lange Syndrome, the more comfortable they are around Joey which is greatly beneficial to him in all aspects. We have to be the voice for our children, stand strong and help people realize how much of a blessing our children are in our lives. How much they teach us. How imporant they are to us. And how much we love them. Don't feel sorry for us...be happy that we are so fortunate to have these amazing children blessing our lives every day.
Please feel free to share this video with friends and family...you never know when you may reach that one person and help them on get on the road to acceptance. Let them know the journey will be awesome...and the trip will be the best one they have ever taken.
You can get the link to the video by clicking here.