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Friday, August 1, 2008

Joey, 9 specialists, & 1 small room...

We made our annual trip on Wednesday to the Children's Developmental Clinic at Children's Hospital in Omaha. This is a clinic where Joey goes and various specialists come in and see him, check his progress, and make their recommendations. This was our third visit, and it went pretty well, as well as can be expected when you try to put Joey in the same room for about 5 hours and have a bunch of people bugging him. It is a great program, and it's nice to have some input from all the different specialists. The orthopedist was first up, and Joey was not to happy to see him (too early) so he wouldn't walk or anything for him. We discussed his feet issues ( they have a tendency to point in when he walks sometimes) and his opinion is to see how he is doing in a year, but most likely will need surgery to correct this problem (not what I want to hear right off the bat). He also thought his braces are too short, so will have to look into that. Nice way to start the morning - right? The OT was next up, and Joey was still not in too great of a mood. She was pleased with his progress, wants him to work on teeth brushing, feeding skills, etc.(she says this every time). He has come a long way with his sensory issues and she was very happy with that. The PT came in next. Joey was in a better mood, so I did get him to show off and walk up and down the hall with his walker. She was very happy to see this, although she is concerned that he is crouching a little when he walks. She also thinks his braces are too short, and could use some different shoes that might help correct his feet issues. She likes the sounds of everything that is being done for him and will make her recommendations. The ST was happy to know he is learning how to use the Picture Exchange Communication System (PECS). We also saw the geneticist, and we are going to follow-up on a tiny spot he has on his backside with some type of ultrasound or MRI. With a spot like this, it sometimes means spinal or renal problems I guess. There aren't any obvious signs of anything, but we will have it checked out so we don't have to wonder about it. That's pretty much it in a nutshell. Throw in the pediatrician, a dietician, a social worker, and a pharmicist and it made for an interesting few hours. We will see what we get accomplished...


  1. That sounds like a lot of information to take in all at once. :)

    Hope you have a nice weekend.

  2. i have been there too, although our little 'round table' meetings are shorter considering that mason is so young and not doing all the much yet. it does get overwhelming and i can't imagine the amount of info we'll get the older mason gets. but it does sound as if your little man is doing well! i love to watch the video of him in the airport and stuff. he is on the go!! such a cutie pie!


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