P.S. I want to include something I wrote and sent to school with Joey. His teacher sent it home with his classmates. I paper clipped a CdLS brochure to each one too.
Hi! My name is Joey. I am one of your new classmates in Ms. Smith's class. I am 4 years old just like you, but you might have noticed I am different in some ways too. I was born with Cornelia de Lange Syndrome. I am not sick, I am just taking a little longer to grow and learn some of the things that you already know how to do. I don't know how to walk yet, but I go to a fun place called Wiggles and Giggles and a nice lady called a physical therapist is helping me to learn how to walk. I like to laugh and play with toys and go outside like you do, but I have to crawl to get where I am going. Watch out because I am pretty fast! I don't know how to talk much yet either, but another nice lady called a speech therapist is helping me learn words too. So don't be upset if you talk to me and I don't answer you back, I am still learning how to say things. Sometimes you might see me in a blue chair when I come to school. Don't be afraid, it's just something I can ride in to help me get around better. If you have any questions about me, please ask Ms. Smith and she will help you find out what you want to know about me. I am happy to be your classmate. I know we will have lots of fun together in school!