www.flickr.com
items in CdLS Awareness through Photos More in CdLS Awareness through Photos pool

Saturday, January 24, 2009

Catching up....

First of all, I want to thank all of you for your kind words and support we have received since the sudden death of my dad. It really means a lot and the comfort you have all sent through blogging land has been very heart warming and has helped ease the sadness of his unexpected passing. We are getting back on track a little bit at a time and trying to resume everybody's hectic schedule. Baby steps, one day at a time.
I will try to catch you up on some other happenings. Joey's tear duct probe went well. I was astonished that the whole procedure only took about 15 minutes. This of course is not counting getting to the hospital at 5:30a.m. for a 7 a.m. procedure, the 30 minutes Joey spent in recovery, and the hour or so after the procedure that was spent with Joey crying and very agitated before they let us leave. The eye doctor said there is no indication that he has any vision problems at this point, there is no pressure on his eyes, and sees no reason for Joey to need glasses. I'm so glad because I don't know how in the world we would have ever gotten him to keep glasses on. Now for a little negative input ~ it will be two weeks ago on Monday that he had the probe done and we are thinking that the procedure maybe didn't work so well. Joey is still waking up with gunky eyes and they are still watery and mattery although not as bad as before. I am disappointed ~ I thought he might finally be free of this problem. So on Monday I am going to call the eye doc and find out what's up. I would hate to have to put Joey through another procdure again so hopefully this won't be the case.
Between my dad's passing on the 14th and his funeral on the 19th, my second baby Tommie managed to turn 13 years old on the 18th. Happy belated Birthday Tommie! Now we officially have two teenagers in the house! Shawn's side of the family had scheduled a Christmas gathering in December which was postponed due to bad weather and they just happened to reschedule it for January 18th. It was held in Albion also which is where Shawn & I grew up and all of our parents still live. It is only about 45 minutes from where we live now. Shawn took the kids for dinner and gifts. My mother-in-law made Tommie a birthday cake. I unfortunately only got to be there for a little while so I did not get to see him blow out his candles but Shawn took some pictures. He saved his money from Christmas and together with his birthday money he had enough to purchase an IPOD Touch which is something he has wanted for awhile. I took him out to supper Thursday night for a little belated birthday celebration and then off to Walmart we went. He is now broke and John is jealous because he blew his Christmas money on other stuff instead of saving for an IPOD. So he is now trying to save money because he wants one. I have to admit it is a pretty cool little gadget. Now if we can keep it from getting stepped on, spilled on, or sat on it will be a blessing.
Other than that, the kids have had a couple basketball games this week, Joey's resumed his therapy schedule and everybody is back in school. And so go the days of our lives. I am trying to get back on my blogging rounds this weekend. Thanks again for all your thoughts and prayers.

Christmas party...


Tommie blowing out his candles...

Joey liked the big TV...


We filled up our 50 states quarter book!!

Emma and Abbie had a make-up party...



Big brother John lets Joey play on the counter ~ he loves the switches!

9 comments:

  1. I'm sorry to hear that the tear duct probe may not have worked. So far we have only had minor issues with goop that don't seem any worse than my other son had. (Here's hoping!) THat is great news about not needing glasses though!! Everyone always asks us about Blue's vision and I just have no idea...

    My husband got an iPod touch and boy oh boy, do I love it! I was never interested in the regular iPods for some reason. There is a game called Tap Tap that the whole family loves to play on it...

    Happy Belated birthday Tommie!

    ReplyDelete
  2. I loved looking at all the fun pictures, Rachelle! I'm so glad the procedure for Joey went well, but it's truly going to suck if it wasn't a success. Keep us updated!

    Justine :o )

    ReplyDelete
  3. Rachelle,
    I am so sorry to hear about your dad's passing. I tried to leave you a message on Thursday while on my way to the Omaha meetings..but I was on my phone and it wouldn't let me post. :( So forgive me for not being able to tell you that sooner! Please tell Tommie happy birthday...can't believe he saved that money up, I would have spent it right away too! Ha! Can't wait to see Mr. Joey...we've missed him!

    ReplyDelete
  4. Rachell,
    I completely understand how you feel about blogging when there is something difficult going on. Somehow it feels better if you can share it. I think that's what finally inspired me to start mine. I just needed an outlet to share thoughts and the good things in life. It helps me remember how very lucky we are.
    I'm also very jeoulous of the IPODtouch!! That's really cool that he could save for it. Eric loves his but it's old school and I keep thinking I would like one but know that he should get a new one before I get one at all.
    I also find it peculiar that I've used the word jeolous twice this morning. I really try not to use that word!!

    ReplyDelete
  5. I am glad that Joey came out of the surgery okay. I hope it worked! I loved all the pics especially the ones with your daughter playing IN her makeup.. too cute.

    ReplyDelete
  6. I am glad that Joey came out of the surgery okay. I hope it worked! I loved all the pics especially the ones with your daughter playing IN her makeup.. too cute.

    ReplyDelete
  7. Glad Joey's surgery went well but sorry to hear it may not be working well :-(

    Love all the new photos...especially the one of Joey playing with the light switch! That has to be a CdLS thing, Jess loved them at that age too :-)

    ReplyDelete
  8. So glad to hear Joey's surgery went well, and I'm sorry about your loss. I just found you from MBC.

    ReplyDelete
  9. BTW, I added your blog to my "special kids" area -- us moms of kids with rare genetic diseases need to stick together :)

    ReplyDelete

Thank your for stopping by our blog! Your kind comments are appreciated!

Our Guestbook